NEDA Performance Report July 1st 2013 to June 31st 2014
NEDA is the national peak consumer organisation representing the rights and interests of people from a non-English speaking background (NESB) and CaLD people with disability, their families and carers throughout Australia.
NEDA is a community organisation funded by the Commonwealth Department of Families, Housing, Community Services and Indigenous Affairs (FaHCSIA/ DSS). It has a small secretariat and is governed by a Council of state and territory representatives. The majority of Council members are people from CaLD/ NESB with disability, their families and carers.
NEDA provides policy advice to the Federal Government and other agencies to secure equitable outcomes for people from CaLD/ NESB with disability, their families and carers. NEDA manages projects relating to people from CaLD/ NESB and disability.
This report provides an outline of NEDA’s progress against the Activity Details as identified in the terms and conditions of the FaHCSIA/ DSS National Secretariat Funding Agreement.
For more information regarding the content of this report, please contact NEDA’s CEO, Dwayne Cranfield on: 0407 878 933.
NEDA provided expert advice to the Australian Government on evolving areas of concern for people from the CaLD and NESB community who live with disability.
In order to encourage open communication and transparency, NEDA provides copies of major submissions, and media releases via the NEDA website and its face book page.
NEDA held regular Council meeting via tele conference, at these meeting all council members were supplied with: CEO’s Report, Financials, Previous meetings minutes, and all meeting carried and agenda. These meetings were held on average every 4 to 6 weeks. Hard copies of all documents from these meetings are retained for reference if required.
It should be noted that during this period much of NEDA’s work and sector / community engagement was and has been centred around the NDIS and the needs of the CaLD / NESB community as NEDA feels that this cohort in particular is at risk of being the “un-met need” as it is this particular group that suffers further disadvantage via the special needs associated with culture and language.
NEDA attended many consultations, contributing to the sector dialogue, it should also be noted that not only waged staff participated in the sector engagement but that all NEDA resources were used ie: Council members and volunteers alike. Other roundtables and forums / consultations attended were:
NEDA has been very active with representation on several reference groups, as follows:
- NCSIRG DSS
- NMAG – National Multicultural Advisory Group - DSS
- SHS – Special Homelessness Services
- AEC – Aust Electoral Commission Disability Reference Group
- NSW – Electoral Commission Disability Reference Group
- Qld- Electoral Commission Disability Reference Group
- Telstra Disability Forum
- ACCAN SACD - The Australian Communications Consumer Action Network
- FECCA Disability working party/ reference group
- DEEWA – Disability Employment Services Reference Group (DES)
- Disability Policy Agenda, National Peaks - AFDO
- ACT Mental Health reference Group (hosted by CMCF) ACT
- Australian Human Rights Commission (legal processes for people living with disability)
- AFDO Departmental Review
- CaLD/ Disability Sector Network NDIS Engagement National
- Disability Housing Forum National Peaks
- NEDA Member Alliance DES Engagement Forums
- NDS COAG National Peaks Working Group
Please note: SDAC (Survey of Disability Ageing and Carers) Reference Group
The SDAC Reference Group meets once or twice a year in Canberra and is unfunded, NEDA was engaged via a several teleconferences and contributed to the discussion.
NEDA’s data analyst Brian Cooper has also been engaged in the discussions concerning the SDAC and this has formed in part some of the rationale behind the NEDA Data Cube Project that will be forming the key NEDA outcome as required by the SFA for the period 2013 – 2014.
NEDA has continued its presence in all states and territories. Each of the listed agencies’ below provides a representative that combined form the NEDA Council.
- Multicultural Disability Advocacy Association (MDAA) NSW (visited)
- AMPARO QLD (visited)
- Diversity and Disability (DnD) VIC (visited)
- Canberra Multicultural Community Forum (CMCF) ACT (visited)
- Ethnic Disability Advocacy Centre (EDAC) WA (visited)
- Multicultural Council of the Northern Territory (MCNT) NT (visited)
- Multicultural Council of Tasmania (MCOT) TAS (not visited)
- Disability Rights Advocacy Service Inc. (DRAS) SA not visited
It should be noted that First Persons with a Disability are joining as associate members.
All key stakeholders ie: members were approached for feedback in regards to the assessment of NEDA’s various reports and projects, and their comments were added and referenced.
NEDA has engaged in a process of enlarging its associate membership in all states and territories and sees this as one of its priorities.
NEDA continues to engage with other key stakeholders with in the various disability and CaLD/ NESB sectors:
- Australian Federation of Disability Organisation (AFDO) and its members
- People with Disability Australia (PWDA)
- Federation of Ethnic Communities Council of Australia (FECCA)
- Multicultural Youth Advocacy Network (MYAN).
- Carers Australia
- Brain Injury Australia
- PWD (ACT)
- AMAWA- no longer operating
- Aust Deaf Blind Council (ADBC)
- Advocacy For Inclusion (AFI)
- Aspersers Advocacy ACT
- First Persons with a Disability Network
- Carers ACT
- Catholic Care (ACT)
- Physical Disability Australia (QLD)
- Ethnic Disability ACT,
- Settlement Services International SSI (NSW)
- National Disability Services
- Deafness Forum
- National Council on Intellectual Disability
- Women With Disability Australia (TAS)
- Children with Disability Australia (Qld)
- Blind Citizens Australia (BCA)
- Deafness Forum (ACT)
- Action on Disability with Ethnic Communities (Vic)
- Ethnic Child Care, Family and Community Services Co-Op (NSW)
- Refugee Council of Australia
- Settlement Council of South Australia
NEDA was engaged in several activities/ meetings during the period with both Government and Non- Government agencies listed are the more noteworthy.
03/07 NDIS Task Force
08/07 Media/ webinar Senator Jan McLucas rehearsal
10/07 Uni of NSW Social policy unit CaLD Disability Prof Jarman/ Dr Bergman
22/07 and 23/07 NMAG Meeting
23/07 Carers Aust, AFDO and NDA NDIS Reference Group
24/07 DES meeting re NEDA Data collection and data cube project
05/08 DES Peaks forum tele conference
09/08 Human Rights Reference Group Sydney UNI – Ron McCallum
13/08 Brain injury Australia Forum Canberra
13/08 Meeting with Senator Fifield NEDA/ AFDO
14/08 Islamic Community Disability Forum
18/08 DES National Engagement Forum DES project
19/08 AFDO DEEWA Sector Development
20/08 NEDA meeting Senator Lundy/ MP Brodtman
22/08 Ethnic Community Council (Vic)
22/08 FECCA ability links forum (Syd)
28/08 Aust Fed Police Ethnic Forum
03/09 NDIS ACT community engagement forum
03/09 AFDO restructure consultation David Craig
10/09 FECCA / NEDA Data collection meeting (Syd)
12/09 AMAWA NDIS/ NDIA NFP sector ACT Gov, presentation by NEDA
16/09 AMPARO NDIS forum (Qld)
18/09 Qld Electoral Commission Disability round table
18/09 and 19/09 AFDO Peaks meeting/ forum Canberra
23/09 National Relay Service disability CaLD round table
24/09 Senator Sue Boyce Downs Syndrome (discussion)
01/10 Senator Mitch Fifield
11/10 Sector farewell Lesley Hall
15/10 NMAG/ Cath Halbert NDIA (Syd)
15/10 MDAA alliance member meeting (Syd)
22/10 AFDO restructure Tele conference
22/10 ACT Gov Multicultural Services Department re: NDIS
25/10 MDAA NEDA data collection NDIS (Syd)
29/10 Lesley Hall funeral (Vic)
31/10 DANA conference (Qld)
04/11 NDIA research development UTS (Syd)
06/11 AFDO working party policy platform
07/10 NDIS ACT forum
07/11 ACOSS members meeting
12/11 Advocacy for inclusion NDIS CaLD/ NESB engagement
13/11 NDIS Forum ACT – Woden
14/11 DEWA / DES meeting
16/11 PWD ACT AGM
18/11 Bank MECU disability policy paper launch
18/11 AFDO working party tele conference
18/11 Meeting with FECCA CEO collaborative partnerships
20/11 Nat Press Club Yooralla Media awards Minister Fifield
20/11 Canberra Hypothetical Sue Salthouse
25/11 AFDO planning meeting (Vic)
26/11 National Disability Awards
28/11 CMCF multicultural Awards (ACT) – MEMBER
29/11 NEDA AGM
02/12 ABS meeting CaLD/ NESB data collection
03/12 ANU Dr Ann Nevelle data collection
09/12 AFDO working party tele conference
17/12 AFDO working party tele conference
17/12 CMCF AGM – MEMBER
20/12 MLA Chris Bourke CaLD / NESB Disability issues
20/01 FECCA tele conference re: NEDA/ FECCA MOU
29/01 NMAG (Syd)
30/01 MDAA DES project focus group (Syd)
30/01 Meeting with PWDA (Syd)
05/02 COAG NDS progress report tele conference
05/02 Multicultural Leaders reception
11/02 National Union of Students with Disability
12/02 NDIS community employment Forum (ACT)
20/02 DES Community Engagement forum EDAC (WA)
24/02 COAG NDS progress report tele conference
26/02 Masters student placement commenced Uni of Sydney
28/02 FECCA Disability Committee meeting (Vic)
04/03 AFDO Disability Policy Agenda tele con
06/03 DANA DPO meeting
07/03 Electoral commission of NSW (Equal access to democracy) (Syd)
11/03 NMAG (Syd)
11/03 FECCA disability committee re: NEDA data collection and data cube
17/03 Bank MECU press club Minister Kevin Andrews
17/03 EDAC remote WA staff tele conference re: NDS review
18/03 MP Craig Laundy Parliament House
18/03 PWD ACT disability awareness campaign – CaLD/ NESB
19/03 DES project ACT/ national; tele conference NEDA
20/03 NDS NEDA national tele conference re: Survey NEDA
25/03 SSI meeting collaborative partnerships
25/03 Meeting NDIA – David Bowen (ACT)
26/03 AFDO Disability Policy Agenda tele con
26/03 MP Craig Laundy Parliament House
27/03 NDIS housing forum (ACT)
28/03 Disability housing forum sector Parliament House
28/03 Uni of Canberra National Disability Policy
01/04 David Bowen/ Pino Migliorino re: NDIS/ CaLD engagement forum
07/04 National Disability Awards- local government assessment group
08/04 HACC NDIS just better care forum presentation by NEDA
09/04 DES sector meeting peaks
10/04 DES sector –consumer meeting
16/04 AFDO Disability Policy Agenda tele con
29/04 ACT CaLD community forum CMCF MLA Chris Bourke
06/05 CaLD ways regional forum (ACT)
07/05 NDIS/ CaLD engagement forum tele conference
08/05 Settlement services tele conference presentation by NEDA
13/05 Budget lockdown
13/05 Meeting with AFDO/ Carers Australia/ Shadow Minister Macklin
14/05 Joint Media event Parliament House ACOSS/ PWDA/ AFDO/ NEDA/ Carers Aust
21/05 Post budget event ACOSS Joe Hockey
26/05 NDIS CaLD sector forum engagement (Syd) NDIA office
27/05 NEDA Data cube presentation DSS office
29/05 DSS national disability employment strategy tele conference
03/06 NEDA focus group tread gently research project
10/06 Australian electoral commission tele conference
16/06 NEDA focus group tread gently research project #1
23/06 NEDA focus group tread gently research project #2
30/06 Tele conference PWDA re new disability alliance
Other activity of note:
NEDA engaged several university students by way of student placements, universities engaged: Sydney Uni Masters student in Human Rights, Uni of NSW Masters student in Social Work, Aust Catholic Uni Under Graduate in Social Work.
The placement from Uni of NSW is producing a paper (Tread Gently- Child protection and disability with CaLD communities)
Aust Catholic Uni placement is producing a paper on the nexus between the child protection acts in each state and territory and how they incorporate the CaLD community and those people living with disability.
Both papers will be produced by NEDA and form research development and be active NEDA documents for publication.
Reports and Papers produced during the period:
- Disability Employment Services (DES) consumer engagement project
- National Disability Strategy (NDS) Report
- Inquiry in the Migration Amendment Bill
- Joint Submission to Affordable Housing Inquiry NEDA/ DANA
- Joint Submission to Affordable Housing Inquiry (NSW) NEDA/ PWDA endorsed
- Joint Review of equal recognition before the law and legal capacity for people with disability pub AFDO/ NEDA
- Survey on DES providers re: Culturally & Linguistically Diverse Clients
- NEDA Feedback on DIAC Proposed Changes to Health Requirement (joint standing Committee)
- NEDA Data Cube Project CaLD/ NESB / Disability, statistical research and paper, this paper and the Data cube tool were presented to the Department on: May 27th 2014.
- Submission into “A New System for Better Employment and Social Outcomes” Review of Australia’s Welfare System
It should be noted that two projects/ reports were started within this reporting period and are linked to two student placement that are still running with the reports due by October and November. These two projects will form part of the NEDA research workload and will be made available and reported against. One project is for a Masters of Social Work student and the second research paper is for an undergrad Social Work placement. Both placements are mentioned previously in this document.
Community & Sector Development
#1 NEDA Representation at the UN Disability Youth Delegation in New York
Ace Boncato represented NEDA and her employer MDAA as part of a youth delegation supported by the Australian Human Rights Commission. The program provides funding for representatives of disability peak and advocacy organisations to participate in overseas conferences related to the Convention on the Rights of Persons with Disabilities (the DisCo).
Ace represented NEDA and more importantly young people living with disability from the CaLD community to the Conference of States Parties (COSP) in New York, 10 - 12 June 2014.
This may have been the first time NEDA has sent a representative to the UN in New York, this is a significant representation, and NEDA benefits greatly from the association.
Ace is a young CaLD woman living with disability. She is employed by NEDA’s member organisation in Sydney, Multicultural Disability Advocacy Association of NSW (MDAA) as a research and policy officer. NEDA’s research and policy officer produced the application; we received word back that the application submitted by NEDA was of a very high standard. Please see the Human Rights media link:
#2 Ethnic Disability ACT
NEDA was also instrumental in the forming and application process for a seeding grant to establish Ethnic Disability ACT (EDACT), an ACT based ethnic disability peak. NEDA staff formulated the funding proposal and together with Juan de la Torre attended a meeting with ACT government to discuss the project and seek funds.
At the moment EDACT share the NEDA office space and due to the combined efforts have been able to secure funds to employ one part time staff member/ project officer. It is envisaged that when EDACT becomes established they will seek membership to NEDA and represent CaLD/ NESB people living with disability within the ACT.
#3 NEDA Research and Policy Reference Group
The National Ethnic Disability Alliance (NEDA) has set up a National Policy Working Group which aims to create a collaborative process with a shared visioning in promoting and protecting the rights and interests of people from culturally and linguistically diverse (CaLD) backgrounds and/or non-English speaking backgrounds who live with disability their families and carers.
The primary aim of this group is to discuss, identify and address key policy issues affecting people from CaLD and/or NESB communities with a disability, their families and carers.
NEDA believes that this group will allow representatives from key stakeholders and organisations to provide accurate advice and share evidence-based information from their constituents; as well as to provide input and feedback to Government submissions and reports prepared by NEDA.
The National Policy Group will hold a teleconference once every eight-ten weeks and will be convened by NEDA CEO and/or NEDA Research and Policy Officer. Meeting agendas and minutes will be provided by NEDA Research and Policy Officer (ie. preparing meeting agendas, supporting papers and/or preparing notes).
The meetings may be establish to address on specific projects, reports and/or Government submissions, which may be delegated to address specific issues. Each participant of the Policy Group would be sent a copy of draft reports, submissions and minutes to be distributed to their constituents.
#4 CALD Disability Advocacy Network Roundtable
NEDA has been involved in the formation of a CaLD / NESB disability Advocacy Network Reference Group/ Roundtable. This group was forged form the Round table held by NEDA in 2013. And was initially been driven by the team at Diversewerks; NEDA was involved in early discussions with regard to its formation and since the meeting occurred has taken over the secretariat role for this group.
The culturally and linguistically diverse (CALD) disability sector has been monitoring the progress of the NDIS within its launch/ trial sites and is aware of the low levels of Scheme participation by people with a disability from CALD backgrounds.
Equally there is a strong feeling that the sector has not been sufficiently involved in either the development of the program nor its initial implementation. In fact, there is already a concern that the launch sites will not provide an appropriate level of learning as to the efficacy of the NDIS for people with a disability from CALD backgrounds, as the areas chosen have low CALD populations.
In response to this, a network of CALD disability advocacy bodies have come together to seek an opportunity to canvass a range of issues with the NDIA, with the view of developing and articulating a CALD Strategy for the NDIS.
The CALD Disability Advocacy Network Roundtable is the result of these representations and is being fully supported by the NDIA. The Roundtable meeting was held on Monday 26th May 2014 in the Sydney offices of the NDIA. The Program for the Roundtable was developed after consultations with the NDIA and a network teleconference.
This Roundtable should be seen as a development opportunity to further the work and advocacy that has been led by the National Ethnic Disability Association (NEDA) during the development phases of the NDIA.
Representatives from the following organisations will be in attendance
Action on Disability with Ethnic Communities (ADEC)
Disability Rights Advocacy Service (DRAS)
Ethnic Child Care, Family & Community Services Co-op (ECCFCSC)
Ethnic Disability Advocacy Centre (EDAC)
Federation of Ethnic Communities’ Councils of Australia (FECCA)
Multicultural Council of the Northern Territory (MCNT)
Multicultural Council of Tasmania (MCoT)
Multicultural Disability Advocacy Association (MDAA)
National Ethnic Disability Association (NEDA)
Settlement Services International (SSI)
NEDA Data Cube
Access to the NEDA Data Cube Project is via the NEDA website; the statistics can be accessed by any visitor in-order to reference the numbers concerning the CaLD/ NESB community living with disability. Many students and other smaller not for profits have commented on the Data cube tool and stated that it is a great resource offering data that is not readily available to the general community.
It should also be noted that data captured for the NEDA Data Cube Project has been shared with other NGO’s and national Peaks: AFDO, PWDA, WWDA, FPDN, EDAC, MMDA, AMPARO, NDIA/ NDIS, FECCA, SSI, ACOSS, Ethnic Disability ACT, DANA, NCID; to name a few.
NEDA and the MEDIA
During the period NEDA was involved in several radio interviews:
- 2XX NEDA has a regular spot with 2XX ie: 1/5 weeks discussing the CaLD and NESB community and the disability sector.
- 3CR NDIS/ CaLD /NESB issues. X 2
- 2CC NDIS and the Canberra community, CaLD/ NESB. X1
- SBS issues concerning FECCA/ NDIS start up points/CaLD/ NESB. X3
- ABC Radio Goldfields Cultural issues. Regular presenter
- RPH Adelaide NDIS/ CaLD / NESB issues x 2
- Ethnic Community Radio WA NEDA President has a regular 1/7 programme in conjunction with our member organisation EDAC.
NEDA also released several press releases approximately 13 during the period, most commenting on the NDIS and CaLD and NESB concerns. These releases were sent to most media outlets and Government officials with an interest in NEDA core work, they were also circulated to NEDA’s stakeholders via our own internal network and also via the AFDO bounce network.
NEDA, with regard to media releases spent considerable energies in advocating for the rights of the Kabir family and the cancellation of their skilled migrant visa due to the illness of their son. NEDA utilised its membership and access to social media as well as lobbied ministers and Senators alike to have this situation reversed. After many months of advocacy and ministerial lobbing the cancellation was reversed and the family allowed resuming their residency.
NEDA staff also attended the DES conference in South Australia in August of last year presenting a workshop with regard to DES participation rates within the CaLD and NESB community. Again this presentation was based largely on data captured from the Data Cube Project and became the precursor for the DES project mentioned previously. From this presentation came a request from the department for access to the NEDA figures and our data expert. Both the CEO and NEDA President attended the conference.
NEDA continues to develop our interactive website The new site can be accessed at www.neda.org.au The site has most NEDA documents, press releases and as well audio files, the site is also equipped with Google translator and has links to most government stakeholders and the Ethnic/ disability community as well as links to the NEDA membership.
The NEDA website is also linked to our Face book page and it carries some of NEDA statistical research that is available to the community.
Shadow Minister Macklin, Senator Mc Lucas, Senator Boyce, Shadow Minister Bowen, MP Brodtmann, Senator Lundy, Shadow Minister Ellis, Senator Siewert, Senator Smith, Senator Cash, Minister Fifield, Minister Andrews, MP Laundry,
Local MLA contact: MLA Burch, MLA Dr Burke, MLA Smith, MLA Jones MLA Leader Opposition Hanson, Chief Minister Gallagher