National Ethnic Disability Alliance

Challenging Stigma

Let’s Talk About Why We Don’t Talk About Disability

Stigma, Shame and Discrimination Faced by People with Disability from Culturally and Linguistically Diverse Backgrounds

NEDA is grateful for the generous assistance provided by Bank Australia for this Project via its community grants program.

Many people with disability who come from different cultures and/or speak languages other than English deal with stigma.

What is stigma?

Stigma means people think negative things about you because of who you are, such as your disability or your cultural background. 

Stigma is not just about what a few people think. It comes from the way society thinks and acts.

Some groups of people are treated as less important than others. People who have more power in society often decide what is seen as ‘normal’.

You might see this happen in your own culture, or in the wider community.

Stigma can cause other people to treat you unfairly because of who you are. This is called discrimination. 

Discrimination can happen in your everyday life, in the community or when you try to find work and access disability services or health services.

Also, knowing that other people think badly of you can make it harder to talk about your disability–in your own culture, and in the wider Australian community.

Talking openly about your disability is a good thing. It can help us all to understand disability better, and we can meet people who might have the same experience.

There is not much research about the experiences of stigma and unfair treatment of people with disability from different cultures.  

About this Research

This research was conducted by the National Ethnic Disability Alliance (NEDA) with
support of a $20,000 community grant from Bank Australia. It was designed to
centre the voices and lived experience of people most directly affected by stigma and
discrimination. It draws mainly on:

15 in-depth interviews with people with disability from culturally and linguistically diverse (CALD) backgrounds and family members

Two participatory workshops. A total of 35 unique participants took part across the two workshops.

Participants represented a wide range of disability types and cultural backgrounds

What Participants Shared with Us

Participants described stigma related to disability as something that often operates quietly within families and cultural communities. Rather than being openly discussed, disability was commonly treated as taboo, associated with shame, or managed through silence.

Participants spoke about:

On impacts on participation, relationships, and belonging

"Instead of changing things so I could be part of everything, they just asked me to sit in one spot and said they'd bring things to me."
Man with a physical disability
from West African background

On reluctance to seek support and long-term consequences

"You end up having to advocate all the time, because the system isn't set up to understand your family or your culture."
Family Member and Carer of a person with disability
from a West Asian background

On emotional and psychological impacts

"It's exhausting having to explain yourself all the time, especially when people don't really believe you because they can't see it."
Man with a chronic illness
from a Sub-Shaharan African Background.

Strategies to Overcome Stigma and Discrimination

Participants co-designed practical strategies to challenge stigma, strengthen inclusion, and create communities where people can participate with dignity, respect, and belonging.

3 advocacy messages emerged strongly from participants:

‘Different cultures, different abilities, equal respect’.

‘You don't need to fix disability. You need to fix discrimination’.

‘Inclusion starts when assumptions stop’.

Read the Full Report

LET’S TALK ABOUT WHY WE DON’T TALK ABOUT DISABILITY
Stigma, Shame and Discrimination Faced by People with Disability
from Culturally and Linguistically Diverse Backgrounds

The cover of the report "Let's Talk About Why We Don't Talk About Disability: Stigma, Shame and Discrimination Faced by People with Disability from Culturally and Linguistically Diverse Backgrounds".

Thank You

NEDA is grateful to Bank Australia for providing a community grant to support this initiative.

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